So my friend’s child was diagnosed with Angelman’s Syndrome…   I am grieving my friend’s loss.

 

For those of you who’ve never heard of Angelman’s Syndrome… It’s a rare neuro-genetic disorder which presents with stiff, jerky movements, absent or very limited speech, seizures, and excessive smiling or contentment.  All children affected with Angelman’s Syndrome exhibit severe developmental delays.  Most exhibit microcephaly, or small head circumference, along with several associated characteristics such as tongue thrust, feeding difficulties, and more.  

 

This news has really impacted my husband and I… Maybe it’s because our children our so close in age… Maybe it’s because we too had dreams and illusions about them enjoying a beautiful friendship…  

They will still be friends but there will come a time when the friendship will change… and that’s sad…

 

This is close to home and we feel for them and the turmoil they are living at this moment… With time, there will be acceptance and peace… but initially the devastation of losing dreams of your child doing the most basic things in life such as eating, talking, and learning to walk is a burden or the cross that these parents will have to bear… 

 

Everything happens for a reason and I hope that my dear friends can use the smiles and happiness that these Angel’s bring to our world to come to terms with the loss of their “fantasy” child and the presence of their new child… 

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