June 2012


So my friend’s child was diagnosed with Angelman’s Syndrome…   I am grieving my friend’s loss.

 

For those of you who’ve never heard of Angelman’s Syndrome… It’s a rare neuro-genetic disorder which presents with stiff, jerky movements, absent or very limited speech, seizures, and excessive smiling or contentment.  All children affected with Angelman’s Syndrome exhibit severe developmental delays.  Most exhibit microcephaly, or small head circumference, along with several associated characteristics such as tongue thrust, feeding difficulties, and more.  

 

This news has really impacted my husband and I… Maybe it’s because our children our so close in age… Maybe it’s because we too had dreams and illusions about them enjoying a beautiful friendship…  

They will still be friends but there will come a time when the friendship will change… and that’s sad…

 

This is close to home and we feel for them and the turmoil they are living at this moment… With time, there will be acceptance and peace… but initially the devastation of losing dreams of your child doing the most basic things in life such as eating, talking, and learning to walk is a burden or the cross that these parents will have to bear… 

 

Everything happens for a reason and I hope that my dear friends can use the smiles and happiness that these Angel’s bring to our world to come to terms with the loss of their “fantasy” child and the presence of their new child… 

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So sometimes I get antsy… I want to jump on a plane and move to the beach… not just any beach… paradise… living simple sounds great… Not having to deal with the rush of city life… keeping up with the joneses… the judgemental attitudes that surround life in the suburbs… 

my wish a simple, comfortable life… making an income (a good one at that) on my terms with my knowledge… 

The salty air and sounds of the waves crashing has always relaxed me and brought me a peace and comfort that I lack in the suburbs of the city…  I love the carefree life of the beach… island time appeals to me… 

The city feels rigid and intolerable at times… The beach seems more free and accepting.  I am a hopeless romantic… 

I have decided to begin preparing myself and my family for a change… When will this change happen you ask?  Well, I am not sure… It will happen when we are ready… 

So sometimes I get antsy… I want to jump on a plane and move to the beach… not just any beach… paradise… living simple sounds great… Not having to deal with the rush of city life… keeping up with the joneses… the judgemental attitudes that surround life in the suburbs… 

my wish a simple, comfortable life… making an income (a good one at that) on my terms with my knowledge… 

The salty air and sounds of the waves crashing has always relaxed me and brought me a peace and comfort that I lack in the suburbs of the city…  I love the carefree life of the beach… island time appeals to me… 

The city feels rigid and intolerable at times… The beach seems more free and accepting.  I am a hopeless romantic… 

I have decided to begin preparing myself and my family for a change… When will this change happen you ask?  Well, I am not sure… It will happen when we are ready… 

I dream and dream and dream and dreammmmmmmm….

I have all these things, ideas, desires in my head… The hard part for me is having the guts to do them…

So far, I have met my dream of having a water birth at home… I finally started the practice model I’d been talking about since grad school…

Now the one thing that I keep coming back to is living by the beach… It’s my lifelong dream to live care free at the beach…

lately it’s been living in Bali and becoming a buddhist who practices yoga…

I want my kids to experience travel, culture, and diversity firsthand… but the other part of me wants the kids to have opportunities for the typical American Dream… college, business, engineering, what ever their heart’s desire…

I’ve moved them to a montessori school which I hope allows the creativity to develop and for them to find their strengths and loves not typically found in the traditional school system…

In Bali, there’s a private school called the green school… It looks absolutely amazing. Shouldn’t we all have the opportunities to send our kids to schools which offer and value life more than the traditional school system developed to educate factory workers… hence the bells that ring throughout the day…